Anyway, the reason for this post is, really, to ask everyone for their prayers or good thoughts for us TOMORROW. Because tomorrow we (finally!) have our screening scheduled with the County Board of Education/Special Ed program. They will assess Handsome Man and then we will find out if his condition qualifies him for the program. WE NEED THIS. If he gets into the program we expect they will have a behavioral therapist who will be able to work one-on-one with him at his school, and they will create an "IFP" or an "IEP" for us--and I'm hoping, we'll get plugged into a greater network of help that we can utilize. I am still trying to sort everything out and figure out where to get help and how. When you find out your child has a special need, it's not like someone hands you a manual on what to do. It's more like following a trail of breadcrumbs.
As far as the meds go, the pediatrician said we could safely up his dose, based on his weight/height etc.. I am going to try this and monitor him carefully. The psychologist said we should be able to see improvement within one week if it is working. If not, then we need to try something else. I asked her for a referral for a child psychiatrist, who could help us with this more on the medication side. Obviously, I don't want to drug my child without cause, or forever, but we need to find a way in with him, so that we can even get to the point where he can benefit and handle say, weekly sessions with a behavioral therapist. At this point he's not even able to do school, unless I'm there to shadow him throughout the day. This is difficult for me to do since I have Grace with me.
Please hold us in your thoughts tomorrow morning, and hopefully we will be getting some more help/answers soon.
9 comments:
Hang in there. As the sibling, younger sibling, of someone with add i WISH someone medicated my sister, and got her real pysychiatic help, I love her but she tortured me as a child.
Hey there, I'm mostly a lurker but have been reading for years. I'll keep Handsome Man in my thoughts but wanted to let you know I've worked in special ed for the last 11 years. If I can be of any help, just shoot me an email meghan (dot) e (dot) hoffman @ gmail.
You're right, the whole eligibility process is confusing and not parent friendly at all. Good luck with it all
I totally agree that you should see a child psychiatrist. It's been so interesting to me in my own health issues to see how much of difference there can be when I've seen a specialist.
Don't be afraid to get a second opinion, either. I'm not doubting HM's issues, but as an educator I can tell you that 3 is super early for a dx of ADHD and especially ODD, so if it's possible to get more information it would definitely be helpful.
All fingers crossed that his meeting goes well and he gets into this program. Any child will benefit from behavior therapy, so it would be especially helpful for HM and your family!
Good luck!
I'm crossing all the crossibles. Sending you both good thoughts of getting the help that will make a difference.
XO
We call it parenting outside the box. When none of the books out there seem to fit your unique situation. Go with what you feel is right in your head and heart. It's your child, and as long as you can sleep at night, then you are on the right path. Hang in there!
As I was reading the first part of your post, I was questioning if you had looked into an early childhood program. Special education can be an overwhelming, scary place but I have seen it do wonders many times. Handsome Man may start to thrive with some structure and daily therapy. And hopefully, you will be given more guidance and answers too.
Hope all went well today.
Hey -- I really hope all went well yesterday and you qualified for the program. I'm so sorry HM is having such a hard time. Hope some relief comes soon -- for all of you -- in some form. My thoughts are with you!
Lots and lots of love and thoughts for you all!
Lots of prayers and positive thoughts coming your way. I have E&R on IEPs due to their hearing loss, and it offers great peace of mind; I hope you get the help you need. Truly, the investment in IEPs benefits EVERYBODY, so I can't imagine why you wouldn't get approved. Good luck.
Post a Comment